Not what we were expecting

Today (I wrote this on the 24th but didn't post it until today!) was a very stressful and hard day, one that I wish I could redo. I have wanted to start a blog for a while and today has made me finally do it(plus I can't sleep!).

But first there is some information that needs to be explained. Keaton was born very healthy and beautiful on March 10, 2012. There was no sign of any abnormalities or problems and no issues throughout the whole pregnancy. A couple weeks later at his appointment with Dr. Sears we were told he had a heart murmur, but not to worry! He would need an echocardiogram just to be safe. So on April 13 we took the little man to have this easy procedure done. Dr. Sears got back to us and the results were normal! Thank God! We assumed we were in the clear! 

Fast forward to his 6 month check up on September 10. The doctor checked the normal stuff. His weight is in the low percentile, but that is not uncommon for Prososki children! He looks healthy, he's always smiling, and doing great developmentally. He was listening to his heart and said that the murmur had gotten louder. He then checked his pulse which was faster than it should have been. He put in a referral to see a pediatric cardiologist. We called and got the appointment for September 24.

So today, September 24, didn't start out the best. I had red, goopy eyes when I woke up. I knew we had Keaton's appointment at 11:20 about a half hour away. So I called my doctor, got in at 9:45, and knew we had to be headed to Keaton's appointment by 10:30AM. We waited for my doctor for 45 minutes and told them we had to go. The doc looked at me and said she would send a prescription. So we were on our way to the cardiologist. Keaton had quite the grumpy look on his face on the way there. 

I liked the office as soon as I walked in. They had a dog roaming the office which was nice! Dr. Berdjis talked with us and got some history on Keaton. He listened to his heart and took his pulse. He believed that it was his something valve..not quite sure. We went in to have the echocardiogram. The tech was great! He joked with us and explained some of what he was seeing. He noticed that the issue was with his aortic valve. After he was done with the echo we had to go back to see the doctor. He explained to us that Keaton has aortic stenosis. The aortic valve is thick and the left side of his heart has to work harder to pump the blood. If untreated it can lead to scar tissue in the heart. We were told that he will have to probably have a balloon catheterization in 6 to 12 months to open up the valve. The long term is unknown which is probably the hardest part for me. There is no guessing what might or might not happen. Each case is unique! If Keaton gets sick at all he is at a higher risk so we have to keep a close eye on him! His next appointment is in 2 months to check and see how everything is going..and then decisions are made from there.

So that left us with a very crappy day, but it got even better!
We ordered pizza for dinner and thought that we would relax after an emotional day. Adalie was complaining of a stomach ache at dinner, but we thought she was saying that so she could have dessert later without eating dinner. Turns out she wasn't lying. At the dinner table she got up because her stomach hurt and threw up all over the floor! I don't do puke so thankfully my husband and in-laws were here to help!

The whole situation makes me very thankful for great doctors! I think I am going to be a nervous wreck until his next appointment! It's hard not to think of the struggles that Keaton may have to go through. Possible surgeries or even open heart surgeries, but we'll have to wait and see! I think this diagnosis has made our family more thankful for what we do have!